Mission » Notes » Cancer.im Foundation Mission

  • Cancer.im Foundation Mission

    Posted by Chris Ryan December 4, 2018 - Category: Health 405 views - 0 comments - 0 likes - #mission  #Cancer.im Foundation Mission  #Cancer.im Foundation 
    Our Mission - Help Raise the Quality of Life of a Cancer Patients Everywhere, Regardless of Their Ability to Pay

    How we accomplish this, is by operating the www.cancer..im. social knowledge network. Consisting of survivors, caretakers experts, and volunteers, sharing experiences and insight. Cancer.im harnesses an online, cause-based Social Support Network (SSN) for the benefit of the cancer patient community. This system is based on the modular adaption, construction and best practices implementation (see “Screen Shot 1”, below) inspired by the European Organization for Research and Treatment of Cancer (EORTC)’s, Quality of Life Questionnaire-C30 (QLQ-C30). 

    The Cancer.im community allows beneficiaries the ability of recruiting resources and support via an online collaborative-based community. The SSN is made up of miniature social networks (see “Screen Shot 2” below), called Micro Support Networks (MSN), which revolve around a single user, or Beneficiary, who is facing a particular challenge or obstacle related to Cancer.  The SSN infrastructure requires users to register and participate according to a specific user type, such as a Beneficiary, Advocate/Advisor, or Volunteer. The goal of each Micro Support Network is to raise the EORTC OLQ-30 score of the Beneficiary by assisting in:

    1. removing all of the frustrations from every possible aspect of the Beneficiary’s personal challenge or obstacle;
    2. removing the anxiety from every possible aspect of the Beneficiary’s personal challenge or obstacle;
    3. giving the Beneficiary the ability of conserving energy by deploying online trained volunteers in the assistance of the Beneficiary’s particular personal challenge or obstacle(s); 
    4. giving the Beneficiary empowered access to all information available on their situation/condition; 
    5. surrounding the Beneficiary with a support community of individuals who are currently experiencing, or who have already successfully experienced, the same situation, personal challenge or obstacle; 
    6. enabling the Beneficiary to create an informed and customized strategy that is molded to their unique value system or situation.; 
    7. enabling the Beneficiary in having the highest confidence level in their course of action; 
    8. enabling the Beneficiary in sharing their experiences online for the future benefit of cancer patients; 
    9. enabling the Beneficiary online access to a core of trained volunteers in the particular personal challenge or obstacle; 
    10. enabling the Beneficiary online access to a body of knowledge (BOK) compiled by volunteer research and input; and;
    11. enabling the Beneficiary, a feedback loop to instill a higher sense of control of the particular personal challenge or obstacle(s).

    On October 27, 2007 Dr. Nicos Nikolaou, on behalf of Fox Chase Medical Center (a National Comprehensive Cancer Network) published a double blind placebo controlled study titled “Quality of Life (QOL) Supersedes the Classic Predictors of Survival in Locally Advanced Non Small Cell Lung Cancer (NSCLC). The study was designed to evaluate the role of quality of life (QoL) as a prediction for survival. Some 91 percent of patients completed a standardized quality of life survey before treatment. All patients were followed for at least 17 months. What they found is quality of life emerged as the most significant predictor of overall patient survival.

    “…We conducted two different statistical analyses including all the usual prognostic factors and either way, quality of life remained the strongest predictor of overall survival,” “…What’s more, if a patient’s quality of life increased over time, we saw a corresponding increase in survival,” Dr. Benjamin Movsas of Henry Ford Hospital 

    This study concluded that by raising a Cancer Patients Quality of Life via the European Organization for Research and Treatment of Cancer (EORTC), Quality of Life Questionnaire-C30 (QLQ-C30) you could directly lower the incidence of morbidity in a cancer patient, regardless of treatment. 

    This Rosetta Stone study was the first evidenced based medicine validation of a medical qualitative measure (Quality of Life) and has further supported studies which show that cancer patient’s outcomes are improved by participating in either a physical or electronic support groups, including but not limited to: 

    1. Jackson JM, Rolnick SJ, Coughlin SS, et al. Social support among women who died of ovarian cancer. Support Care Cancer. 2007;15:547–556;
    2. Weihs KL, Simmens SJ, Mizrahi J, et al. Dependable social relationships predict overall survival in stages II and III breast carcinoma patients. J Psychosom Res. 2005;59:299–306;
    3. Ringdal GI, Ringdal K, Jordhoy MS, Kaasa S. Does social support from family and friends work as a buffer against reactions to stressful life events such as terminal cancer? Palliat Support Care. 2007; 5:61–69;
    4. Falagas M, Zarkadoulia EA, Ioannidou EN, et al. The effect of psychosocial factors on breast cancer outcome: a systematic review. Breast Cancer Res. 2007; 9:R44;
    5. Chida Y, Hamer M, Wardle J, Steptoe A. Do stress-related psychosocial factors contribute to cancer incidence and survival? Nat Clin Prac Oncol. 2008; 5:466–475;
    6. Owen T. Working with socially isolated older people. Br J Community Nurs. 2007;12:115–116;
    7. Kharicha K, Iliffe S, Harari D, et al. Health risk appraisal in older people: are older people living alone an “at-risk” group? Br J Gen Pract. 2007;57:267–268;
    8. Emslie C, Browne S, Macleod U, Rozmvits L, Mitchell E, Ziebland S. ‘Getting through’ not ‘going under’: A qualitative study of gender and spousal support after diagnosis with colorectal cancer. Soc Sci Med. 2009;68(6):1169–1175;
    9. Mohan A, Singh P, Singh S, et al. Quality of life in lung cancer patients: impact of baseline clinical profile and respiratory status. Eur J Cancer Care. 2007;16:268–276;
    10. Schiller JH, Harrington D, Belani CP, et al. Comparison of four chemotherapy regimens for advanced non-small cell lung cancer. N Engl J Med. 2002;346:92–98;
    11. Sarna L, Padilla G, Holmes C, et al. Quality of life of long-term survivorsof non-small cell lung cancer. J Clin Oncol. 2002;20:2920–2929;
    12. Hopwood P, Stephens RJ. Depression in patients with lung cancer: prevalence and risk factors derived from quality-of-life data. J ClinOncol. 2000;18:893–903;
    13. Jatoi A, Hillman S, Stella P, et al. Why do oncologists prescribe – or not prescribe – conventional chemotherapy to geriatric patients with metastatic non-small cell lung cancer? J Support Oncol. 2006;4:311–312;
    14. Jatoi A, Stella PJ, Hillman S, et al. Weekly carboplatin and paclitaxel in elderly non-small cell lung cancer patients: a phase II North Central Cancer Treatment Group study. Am J Clin Oncol. 2003;26:441–447;
    15. Lubben JE, Weiler PG, Chi I. Health practices of the elderly poor.Am J Public Health. 1989;79:731–734;
    16. National Cancer Institute. Protocol development. CTC v2.0 and common terminology criteria for adverse events v3.0 (CTCAE);
    17. Rutledge T, Matthews K, Lui LY, et al. Social networks and marital status predict mortality in older women: prospective evidence form thestudy of osteoporotic fractures. Psychosom Med. 2003;65:688–694;
    18. Eysenbach G: The impact of the Internet on cancer outcomes. CA Cancer J Clin. 2003; 53: 356-371. Available at: caonline.amcancersoc.org/cgi/content/full/53/6/356;
    19. Winzelberg AJ, Classen C, Alpers GW, Roberts H, Koopman C, Adams RE, Ernst H, Dev P, Taylor CB: Evaluation of an internet support group for women with primary breast cancer. Cancer 2003, 97:1164-1173;
    20. Farber JM, Deschamps M, Cameron R. Investigation and assessment of the navigator role in meeting the information, decisional and educational needs of women with breast cancer in Canada. [Web site for the Canadian Breast Cancer Initiative, Centre for Chronic Disease Prevention and Control, Health Canada] 2002;
    21. Eysenbach G, Till JE. Ethical issues in qualitative research on Internet communities. BMJ 2001(10 Nov); 323(7321): 1103-1105;
    22. The Belmont Report. [Web site of the Office of Human Subjects Research, National Institutes of Health] 1979. Additionally, the beneficiary is able to make use of Cancer.im’s powerful social collaboration toolsets, which include a dashboard for finding writers, getting help, and sharing wisdom.